Two clinical trials will open later this year for newly diagnosed patients with AL amyloidosis with moderate to severe cardiac disease.
Dr Gibbs discusses everything from the incidence, diagnosis and treatment of amyloidosis, to supportive care, quality of life, and how he came to specialise in this field.
Keith Moore was “ridiculously young” to be told he had AL amyloidosis and it took nine months before he finally got that diagnosis.
Joe participated ina trial which he says saved his life.
An amyloidosis clinical trial described as “a staggering result, almost never seen in blood cancers”.
Expert interview series: Associate Professor Peter Mollee discusses issues around AL amyloidosis
Fahimeh had an early amyloidosis diagnosis.
Generous support helped deliver a research breakthrough that could lead to the first drug approved for patients with AL amyloidosis.
One week before his brother was diagnosed with amyloidosis, Vince discovered he carried the genes that predisposed him to the blood disorder.
Vince learnt of the concerningly low rates of referral for people at risk of amyloidosis.