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Stories

From real patient stories to tips on living well, hear firsthand from people who have faced blood cancer.

We’ve also got the latest research and advocacy news, as well as stories from our wonderful fundraisers and donors. You can subscribe to our e-newsletters and event news here.

Talking Blood Cancer: festive season wrap-up 2024

In this special episode of the Talking Blood Cancer podcast, hosts Kate Arkadieff and Maryanne Skarparis wrap up the season and reflect on an incredible year filled with impactful stories. They discuss the various conversations they've had throughout the year.

  • Support services
  • Treatments and side-effects
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Bridging the gap for young and middle-aged adults with blood cancer

The Leukaemia Foundation recently shared the successful trial and implementation of a dedicated peer support group for young-middle aged adults aged 20-49 living with blood cancer at the 16th Oncology Social Work Australia & New Zealand (OSWANZ) Conference. This innovative initiative addresses a critical gap in support services for this often-overlooked demographic.

  • Advocacy and policy
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My voice matters

In 2017, Yani Zhao was on an incredible high after competing in the national powerlifting championships. The next day, she was diagnosed with blood cancer.

  • Acute myeloid leukaemia
  • Advocacy and policy
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Talking Blood Cancer: A Family’s Battle with leukaemia

Bhaskar Majumdar and his daughter, Urvi Majumdar, share their experience with blood cancer and the profound impact it had on their lives.

  • Acute lymphoblastic leukaemia
  • Support services
  • Treatments and side-effects
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The Leukaemia Foundation welcomes Australian Government decision to ban using adverse genetic testing results in life insurance

The Leukaemia Foundation welcomes the Australian Government’s decision to ban the use of adverse genetic testing results in life insurance.

  • Advocacy and policy
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World Marrow Donor Day 2024

Leukaemia Foundation staff come together to raise awareness for the Australian Bone Marrow Donor Registry (ABMDR), and the need for more Australians to register

  • Acute lymphoblastic leukaemia
  • Advocacy and policy
  • Treatments and side-effects
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‘Made me the person I am today’

After living with the disease for almost the entirety of her teenage and adult life, 23-year-old Siobhan Hoy is no stranger to the long-term side effects of blood cancer.

  • Treatments and side-effects
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Talking Blood Cancer: Regional Resilience

Michael Burridge candidly shares his experience living with blood cancer and the emotional and physical journey following his diagnosis with myeloma.

  • Myeloma
  • Support services
  • Treatments and side-effects
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From nurse to patient

Rosie Proctor had just moved in with her partner and was living out her dream career as a nurse on the Gold Coast. Then a shock blood cancer diagnosis turned her from caregiver to patient at the very hospital where she worked.

  • Acute myeloid leukaemia
  • Treatments and side-effects
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Talking Blood Cancer: From Leukaemia Diagnosis to Finding Hope and Humor

Siobhan Hoy discusses her experiences living with blood cancer and the aftermath of her treatment, including the challenges she faced, such as the development of graft versus host disease.

  • Acute lymphoblastic leukaemia
  • Support services
  • Treatments and side-effects
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Talking Blood Cancer: From Patient to Nurse

Rosie Proctor recounts her journey with acute myeloid leukaemia, including pain in her hip and a high fever, leading to her diagnosis, on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Acute myeloid leukaemia
  • Support services
  • Treatments and side-effects
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Research news – August 2024

Chimeric antigen receptor (CAR) T-cell therapy is a revolutionary new type of treatment that ‘trains’ a patient’s own immune cells to seek out and kill cancer.

  • Research
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“Keep smiling”

After nearly seven years in remission, Sage Wilder reflects on the power of positivity, finding love, and becoming a father.

  • Acute lymphoblastic leukaemia
  • Treatments and side-effects
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Talking Blood Cancer: Compassion, Humour, and Care

Dr Ralph McConaghy discusses the important topic of having early conversations about serious illness and end-of-life decisions on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Support services
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It took six months to diagnose Kerry’s blood cancer – sadly, she’s not alone

Kerry Boyenga was diagnosed with Australia’s most common type of blood cancer. But she said it wasn’t even on her GP’s radar.

  • Non-Hodgkin lymphoma
  • Treatments and side-effects
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Shock diagnosis, newfound willpower

Kish Modi is facing the momentous task of managing a blood cancer diagnosis. But even with so much on his plate, he’s somehow finding every way in his power to raise awareness.

  • Acute myeloid leukaemia
  • Our supporters
  • Treatments and side-effects
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Carlia Van Den Hoek is living proof of the barriers that many face when diagnosed with blood cancer

Despite advancements in care, there remains a troubling cancer health divide affecting many different communities across the country. A divide that 32-year-old Carlia Van Den Hoek knows all too well.

  • Diffuse large B-cell lymphoma
  • Treatments and side-effects
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Talking Blood Cancer: Overcoming ALL

Rugby player Sage shares his ALL diagnosis, treatment journey, and recovery mindset on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Acute lymphoblastic leukaemia
  • Support services
  • Treatments and side-effects
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“Live life to the fullest”: Josh Gourlay opens up about returning to work and new beginnings after blood cancer

While a shock blood cancer diagnosis put 34-year-old Josh Gourlay’s life temporarily on hold, it also presented him with a new mindset, and new opportunities.

  • Acute lymphoblastic leukaemia
  • Treatments and side-effects
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Talking Blood Cancer: Estate planning and medical directives

Discover estate planning essentials for blood cancer patients with Eleanor Davis on the Talking Blood Cancer podcast by the Leukaemia Foundation.

  • Support services
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Last updated on February 9th, 2023

Developed by the Leukaemia Foundation in consultation with people living with a blood cancer, Leukaemia Foundation support staff, haematology nursing staff and/or Australian clinical haematologists. This content is provided for information purposes only and we urge you to always seek advice from a registered health care professional for diagnosis, treatment and answers to your medical questions, including the suitability of a particular therapy, service, product or treatment in your circumstances. The Leukaemia Foundation shall not bear any liability for any person relying on the materials contained on this website.