Support research with your own blood cancer story

Your lived experience of blood cancer can offer blood cancer researchers a unique, first-hand perspective. Sharing your story is an opportunity to directly contribute to better outcomes for all Australians diagnosed with blood cancer and blood related disorders. 

Together, let’s stand alongside Australia’s blood cancer research community, with a shared passion and determination to transform discovery into difference.

Community Engagement at the Australian Centre for Blood Diseases (ABCD)

Community members with a lived experience of a health issue, provide a valuable perspective on health and medical research, ensuring research performed at the ACBD is relevant, impactful and always undertaken with the patient, carer and/or family member perspective at the forefront. Find out more here: https://www.monash.edu/medicine/ccs/blood-disease/community-engagement

National Oncology Alliance

The National Oncology Alliance (NOA), founded by Rare Cancers Australia, is developing a report that will provide recommendations to Cancer Australia, and the Federal and State Governments on how the rights and roles of cancer patients should be a reality in their lived experience and care. Find out how to have your say here https://www.rarecancers.org.au/news/391/we-want-to-hear-from-you-how-can-we-prioritise-the-rights-and-roles-of-patients