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Category: Stories

Same cancer, same drug but our access to treatment was anything but consistent

They’re three women all battling an incurable type of blood cancer, but Neda, Nikki and Shirley have felt hardship in very different ways.

  • Myeloma
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Neda Masters

I needed better information about clinical trial options

Matthew Fogarty has spent almost five years regularly travelling to the other side of the world to collect the handful of pills that keep his blood cancer at bay.

  • Clinical trials
  • Other blood cancers
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Matthew Fogarty

I took control after becoming adrift in the system

The long wait for a diagnosis took its toll on Bronwyn Bisley, but her biggest challenges lay ahead as the information she desperately needed dried up.

  • Hodgkin lymphoma
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Bronwyn Bisley

Personalised cellular therapy gives Hunter a future

A cutting-edge cellular therapy, made possible by breakthrough research, has given seven-year-old Hunter hope for a brighter future.

  • Acute lymphoblastic leukaemia
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The Madden Family

Drug discovery has remarkable potential for high-risk childhood leukaemia

Dr Michelle Henderson's research is laying the groundwork to develop a promising new therapy for infant ALL.

  • Acute lymphoblastic leukaemia
  • Research
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Dr Michelle Henderson in the lab

From PhD in Melbourne to postdoc in New York

New York-based, Aussie researcher Matt Witkowski has his sights set on improving the effectiveness of CAR T-cell therapy.

  • Acute lymphoblastic leukaemia
  • Research
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Matthew Witkowski

Daratumumab – first new myeloma agent PBAC-recommended in years

The drug has received a positive recommendation for PBS listing.

  • Advocacy and policy
  • Myeloma
  • Treatments and side-effects
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Darzalex

Shirley’s “so well” on her latest treatment – daratumumab

Shirley Irwin has had radiotherapy and two transplants, had surgery, five different lines of treatment, and relapsed twice.

  • Myeloma
  • Treatments and side-effects
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Bruce and Shirley Irwin on the beach

Research aims to improve QOL by decreasing treatment toxicity

Kate Vandyke is leading exciting research examining whether a new inhibitor can be used to prepare myeloma patients for therapies and increase their efficacy.

  • Myeloma
  • Research
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Kate van Dyke

Navigating childhood blood cancer during a pandemic

Archer spent nine months, hundreds of kilometres from home and across state borders, undergoing life-saving blood cancer treatment during the COVID-19 pandemic. 

  • Acute lymphoblastic leukaemia
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Archer Bermingham