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Category: Stories

Support for submission to MSAC for MRD testing reimbursement in ALL

  • Acute lymphoblastic leukaemia
  • Treatments and side-effects
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Dr Peter Diamond

First CAR T-cell trial for myeloma a success for Andrew

Andrew was the first person in Western Australia to have the life-changing therapy.

  • Clinical trials
  • Myeloma
  • Treatments and side-effects
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Andrew and Vivienne celebrating

Ann’s finally in a happy place after 22 years living with myeloma

Ann Bruce shares the story of her diagnosis, in her own words.

  • Myeloma
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Ann Bruce with baby Byron

Diagnosed with leukaemia as a newborn

Zoe Li was a healthy baby when she was born, but five weeks later her parents were told the shocking news… she had leukaemia.  

  • Acute lymphoblastic leukaemia
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Li Family

MSAC advising on cilta-cel CAR T-cell therapy for myeloma

Ciltacabtagene autoleucel (cilta-cel), is being appraised by the Medical Services Advisory Committee (MSAC) for listing on the Medicare Benefits Schedule. 

  • Myeloma
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Venetoclax moves us closer towards zero lives lost to blood cancer

  • Advocacy and policy
  • Research
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Treatment

Expert Series: Professor Andrew Perkins on MPN

It’s emerging in all cancers, but particularly in the MPNs, that “genomics is everything” according to Professor Andrew Perkins, an expert in myeloproliferative neoplasms (MPN).

  • Interviews with experts
  • Myeloproliferative neoplasms
  • Research
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Andrew Perkins and grandson Harry

Sharon’s 30 years living with MPN

Diagnosed with PV and ET at the age of 18, Sharon was having treatment when she fell pregnant with the first of her three healthy children in 2000.

  • Myeloproliferative neoplasms
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Sharon MacIntyre at the market

Expert Series: Dr Noemi Horvath on amyloidosis

Noemi Horvath is a highly reputed consultant haematologist at Royal Adelaide Hospital who has dedicated most of her life to her work and her special interest has long been amyloidosis.

  • Amyloidosis
  • Interviews with experts
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Dr Noemi Horvath with Dr Simon Gibbs, Assoc. Prof. Peter Mollee, the evening’s entertainer, Dr Fiona Kwok, Noemi Horvath, and Pat Neely

Sue’s living with the uncertainty she’s counselled others about

When Sue was diagnosed with a blood cancer, she found herself living through experiences she had discussed in one of her talks, This is Not the Life I Ordered.

  • Amyloidosis
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Sue McConaghey at the Chicago Art Gallery