Optimal Care Pathways for AL-amyloidosis
AL-amyloidosis was previously known as “primary systemic amyloidosis”. In AL amyloidosis, the amyloid forming protein is derived from the light chain component of a protein in the blood called monoclonal immunoglobulin. These light chains are produced by abnormal cells (called plasma or B cells) which are usually in the bone marrow. The underlying bone marrow disorder is known by many different names (MGUS – monoclonal gammopathy of undetermined significance, plasma cell dyscrasia, paraprotein disorder etc) and in most cases is very subtle.
A disease-specific Guide to Best Cancer Care has been developed for the following disease. The guide helps people with cancer to understand the optimal cancer care they should be provided and support people to understand what might happen at each step of their cancer experience and consider what questions to ask.