Public-private partnership set to transform treatment and services for Australians living with blood cancer
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Author: Michael Yare
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A diagnosis and new-born baby
It was 2014, and Tom and his girlfriend had just discovered they were expecting their first child. Just weeks later, Tom found himself experiencing some concerning symptoms. After much investigation, he was diagnosed with Hodgkin lymphoma. Tom's interview sheds light on what it was like to be diagnosed with a blood cancer as a young adult. He shares his experience of diagnosis, and autologous transplant, all while bringing a new baby into the world.
- Hodgkin lymphoma
Clinton and the power of the mind
Clinton Parmenter was living life in the fast lane — socialising with friends, spending time with his family and working hard in his job. He "barely ever came up for a breath of air". When one day, his life was turned on its head when he was diagnosed with acute myeloid leukaemia. In this interview, Clinton discusses his experience in choosing to go ahead with an allogeneic stem cell transplant. He also shares how he harnessed a positive mindset throughout his journey.
- Acute myeloid leukaemia
Diagnosed at 29 years old
29-year-old Sophie Patnicroft-Gray had recently moved from the UK to Adelaide, where she was working and planning to travel, when a routine blood test showed that there was something "a bit off". Then, out of left-field, Sophie was diagnosed with acute myeloid leukaemia. Sophie shares the emotional struggles she faced as a young adult diagnosed with a blood cancer. Sophie also discusses her challenges with fatigue, and how she embraced exercise to improve her health and wellbeing.
- Acute myeloid leukaemia
Jane’s had three different cancer diagnoses in two years
- Acute myeloid leukaemia
- Myelodysplastic syndromes
- Treatments and side-effects
Expert Series: Prof. John Pimanda – lots of work is needed to improve long-term outcomes for MDS
- Interviews with experts
- Myelodysplastic syndromes
- Treatments and side-effects
How Sandra kept her family together through childhood leukaemia
Mother and psychologist, Sandra Evans shares the story of when her eldest daughter, Tahlia was diagnosed with acute lymphoblastic leukaemia at age four. Sandra discusses how she and her husband, Randall, managed their broader family and finances. She recounts the time of diagnosis and treatment, and her experiences with doctors.
- Acute lymphoblastic leukaemia
Esther considers herself “very lucky” she was diagnosed early
- Non-Hodgkin lymphoma
Support for submission to MSAC for genetic testing for blood cancers
- Advocacy and policy
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- “Live life to the fullest”: Josh Gourlay opens up about returning to work and new beginnings after blood cancer
- Advocacy news – July 2024
- Talking Blood Cancer: Estate planning and medical directives
- Running for a Cause: Cal Gates’ Journey from Newcastle to Sydney on foot in one weekend
- World Blood Cancer Day 2024