Australian sports broadcaster Bruce McAvaney to light up the night skies for a cause in his blood!
- Media releases
- Our supporters
Author: Michael Yare
Robin travelled 1,100km to receive a diagnosis
This episode tells the story of Robin Matthews. Robin is a dump truck diver from the APY Lands in far north South Australia, building roads for Indigenous communities. Robin was diagnosed with Stage 4 lymphoma in 2021, and talks about what it was like to face a diagnosis in a rural area of Australia, just months after losing his wife to cancer. Robin shares how his family gave him strength in his darkest days and how finding a community within the Leukaemia Foundation helped him manage his diagnosis.
- Non-Hodgkin lymphoma
MM24 clinical trial – an opportunity for George
Ten months after his diagnosis and having failed standard treatment, George Yiannakis is the first of potentially 12 Australians to go on the international MM24 clinical trial for AL amyloidosis.
- Amyloidosis
- Clinical trials
AL amyloidosis Expert Series interview with Dr Hasib Sidiqi
We spoke to Dr Sidiqi about his specialising field of amyloidosis.
- Amyloidosis
- Interviews with experts
New Optimal Care Pathways to ensure consistent care for people living with blood cancer across Australia
- Advocacy and policy
- Media releases
What drove Nathalie Cook to help list Pegasys on the PBS
Nathalie Cook OAM, who was diagnosed with MPN in 2008, tells the story of the delay in her diagnosis and how after attending a conference in the USA, on the flight home, she made the decision to try to get Pegasys on the Pharmaceutical Benefits Scheme for people with MPN in Australia. It took 7 years to achieve this goal and the hearing her share the story of how she made it happen is truly astounding.
- Leukaemia
- Myeloproliferative neoplasms
PBAC recommends daratumumab for newly diagnosed AL amyloidosis
Daratumumab (Darzalex®) could be the first ever therapy to be approved in Australia for AL amyloidosis.
- Amyloidosis
- Treatments and side-effects
‘Family is the best investment’: Jo’s role as a carer
In our first episode of Season Two, we spoke to Tim Keen who was diagnosed with acute promyelocytic leukaemia (a rare subtype of acute myeloid leukaemia) in 1999. In this episode we speak with Tim's wife and carer, Jo Keen. Jo shares her insights about her role as a carer. She talks about how her relationship with Tim strengthened throughout this tough journey and ways that they remained positive together. She discusses how making time for your family is the best investment you can make for own happiness.
- Leukaemia
Diagnosed with a rare blood cancer, Peter turned to online forums for support
Cast your mind back to 2019, and life pre-COVID. For 56-year-old Peter D'Onghia, that meant a relentless travel schedule with his job as an academic and medical journal publisher – something that led to a delay in following up on blood test results that were, as he puts it, "a little bit odd".
- Other blood cancers
Living with PV has become “a normal way of life” for Debbie
When Debbie McFarlane was diagnosed with the myeloproliferative neoplasm (MPN), polycythaemia vera (PV) in 2013, she didn’t realise it was a form of blood cancer.
- Myeloproliferative neoplasms
- “Live life to the fullest”: Josh Gourlay opens up about returning to work and new beginnings after blood cancer
- Advocacy news – July 2024
- Talking Blood Cancer: Estate planning and medical directives
- Running for a Cause: Cal Gates’ Journey from Newcastle to Sydney on foot in one weekend
- World Blood Cancer Day 2024