We are excited to share some impactful highlights from this past month since our last update, as well as important resources and upcoming events.

Advocacy News

We are pleased to announce that we’ve recently provided seven additional submissions to the Medical Services Advisory Committee (MSAC) and the Pharmaceutical Benefits Advisory Committee (PBAC). This process, and the consumer input we provide, supports more affordable access to potentially life-saving treatments for blood cancer patients in need. The drugs and other treatments were for multiple myeloma, follicular lymphoma, acute lymphoblastic leukaemia and others, and is part of our efforts to help patients have access to the treatments they need.

If you are interested in finding out more, please reach out to Cassandra Sananes, Stakeholder and Ambassador Engagement Lead.

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First Nations Epidemiological Study

The Leukaemia Foundation, in partnership with the Australian Government and Cancer Australia, is investing over $730,000 in a groundbreaking epidemiological study to raise awareness and understand the impact of blood cancer within First Nations communities.

Led by Professor Gail Garvey, a Kamilaroi woman and distinguished Professor of Indigenous Health Research, this research aims to develop high-quality, equitable, and culturally safe health services. Guided by a Project Advisory Group that includes First Nations members with lived experience of blood cancer, the study ensures relevance and respect for the communities it serves. By 2025, we aim to gain a comprehensive understanding of how blood cancer affects First Nations individuals and improve their health outcomes.

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The Giving Cell

The Giving Cell is Leukaemia Foundation’s community of regular donors working together to create a future where no one must face blood cancer. We believe that life-saving research will help discover the causes of blood cancer, while improving the diagnosis and treatments for the 53 Australians diagnosed with a blood cancer every day.

To get there, we urgently need regular community donations to fund research breakthroughs and support services. By giving as part of The Giving Cell, you can help reduce the burden of blood cancer through practical support and research breakthroughs.

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Resources and upcoming events

Here are some resources and upcoming events that may be of interest:

Webinar: Returning to Work

Join us for an insightful webinar where we explore strategies to help you or a loved one return to work safely and sustainably. We will discuss various options and support services available to ease this transition.

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Online Support Service Module: Returning to Work

Blood Cancer Support Professional Amber Laidler discusses how patients can manage and balance cancer and their careers. This module offers helpful tips and insights to support this crucial aspect of recovery.

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Online Support Group: Managing Fatigue

Cancer-related fatigue significantly impacts the blood cancer experience. This support group provides a safe and secure space for patients to share their experiences and find support. Please join us.

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‘Talking Blood Cancer’ Podcast: Love, Life, and Recovery

In this episode of ‘Talking Blood Cancer,’ host Maryanne Skarparis is joined by Joshua Gourlay, who shares his inspiring journey of overcoming blood cancer and successfully reintegrating into work post-remission.

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