Requests for consumer input
Have your say, share your experiences, or try out something new
As part of our Blood Cancer Consumer Engagement Group, we’re continuously finding opportunities for people living with blood cancer to contribute to the design and delivery of our services.
Below are current requests for consumer participation and advice.
Click on the opportunity that appeals to you, and fill out the required information. This will be sent through to our Consumer Engagement Coordinator, who will be in touch within three business days if we can progress beyond your expression of interest.
Subscribe to “Your Blood Cancer News” to keep up-to-date with what’s going on in the world of blood cancer research and support.
Are you aware of our WhatsApp Group?
We rolled this feature out in early 2024 and highly recommend you join our WhatsApp Group as a member of the CE Group. The WhatsApp community group provides the best way to stay informed of our consumer activites emerging in real time and catch any important announcements. As for security considerations, we keep it anonymous and your phone number does not get shared.
Provide feedback on our services and your experiences
Review Leukaemia Foundation disease information booklets (ON HOLD)
Our digital health team is looking for consumers to test our newly released Online Blood Cancer Support Service (posted July 19, 2023)
Participate in an interview for the media or a marketing project
‘Flying Doctor’ Podcast- We have teamed up with Royal Flying Doctor Service (RFDS) for this activity and looking for someone who received a RFDS service or utilised one of their resources during diagnosis or treatment journey (posted July 16, 2024)
Our social media team is looking for those living with blood cancer and connections with particular sporting themes (posted June 5, 2024)
Share your experience with using Leukaemia Foundation transport services (posted Dec 8, 2022) ON HOLD
Spokesperson opportunities
Check back later for future activities.
Participate in a support services program or event
The Education team is facilitating an August webinar themed around ‘Returning to Work’ (posted July 16, 2024)
Become an advocate
Our Advocacy team is wanting to petition Gov’t in a few areas based on your feedback. If you or your loved one can speak to any of these advocacy themes based on your blood cancer patient journey, our team would appreciate your summary quotations (posted July 24, 2024)
We received a call-out from the University of Sydney research team. ‘Have you been diagnosed with chronic leukaemia? (posted (July 24, 2024)
We were approached by the Mater Research Health Consumer Network (MRHCN). Their research team is advertising to join their network regardless of where you live in Australia (posted July 16, 2024)
We are advertising on behalf of Infectious Diseases Society of America (IDSA) who are seeking patient representatives for an ongoing guideline project. (posted May 27, 2024)
We are advertising this on behalf of research team at the University of Sydney, conducting a study within the Psycho-Oncology Co-operative Research Group. They have developed a new questionnaire which aims to assess concerns associated with living with cancer. It involves an initial 30-minute questionnaire and an optional 5-minute follow-up survey two weeks later. Participants are also given the option to participate in a 30-to-40-minute telephone interview. (posted on March 27, 2024)
Researchers from the Australian Institute of Health Innovation, Macquarie University are looking for patients from CALD (culturally and linguistically diverse) backgrounds with cancer OR their carers who have used cancer services or palliative care services in Australia in last 5 years to participate in a 30–40-minute interview study (posted Sept 27, 2023)
Looking for consumers who were caregivers for childhood cancer survivors. (posted Aug 28, 2023)
Leukaemia and lymphoma patients, both current and past: participate in a PhD project (posted Mar 22, 2023)
Consumer Opportunities by Region:
WA: Looking for consumers (including loved ones) and work in mining industry and their patient journey is connected to this industry. (posted Aug 28, 2023)
Last updated on July 24th, 2024
Developed by the Leukaemia Foundation in consultation with people living with a blood cancer, Leukaemia Foundation support staff, haematology nursing staff and/or Australian clinical haematologists. This content is provided for information purposes only and we urge you to always seek advice from a registered health care professional for diagnosis, treatment and answers to your medical questions, including the suitability of a particular therapy, service, product or treatment in your circumstances. The Leukaemia Foundation shall not bear any liability for any person relying on the materials contained on this website.