Useful websites
There are many websites that have information relevant to people living with leukaemia, lymphoma, myeloma and related blood disorders.
If you need to discuss or get more information about what you have found on any of these websites speak with your specialist, nurse or allied health professional.
Some sites offer online forums. You can put forward a question or try to find someone in a similar situation. You will need to check that the information is credible on all websites by checking:
- who prepared the information
- what sources were used and
- see if there is a publication date to determine its currency.
General leukaemia and lymphoma websites
- Leukaemia Lymphoma Research Fund (UK)
- Lymphoma Australia
- Leukemia & Lymphoma Society of America
- National Cancer Institute (USA)
- The Cancer Council of Australia
- Blood Cancer UK (Bloodwise)
- Global CLL Research Foundation
- CLL Topics (US)
- CLL Forum (US)
- UK/European site for CML patients
- International CML Foundation
- Lymphoma Association(UK)
- Lymphoma Research Foundation of America
- The Cutaneous Lymphoma Foundation
- International Lymphoma Coalition
- Lymphoma Support & Research Association
- MacMillan Cancer Support (UK)
- European Leukemia Net
Myeloma websites
- The Myeloma Foundation of Australia Inc
- Myeloma UK
- Multiple Myeloma Research Foundation (USA-based international group)
- International Myeloma Foundation (USA-based international group)
Less common disorders
- International Waldenstrom’s Macroglobulinaemia Foundation (USA)
- The Waldenstrom’s Macroglobulinaemia Community in Australia
- MDS Foundation (USA)
- MDS Alliance
- MDS UK Patient Support Group
- National Organisation for Rare Diseases (USA)
- Myelodysplastic Syndromes Foundation
- Aplastic Anaemia & MDS International Foundation Inc
- Myeloproliferative Disorders Australia
- MPN Foundation
- The MPN Research Consortium
- MPN Alliance Australia
- MPN Education Foundation (USA)
- The Australiasian Mastocytosis Society (TAMS)
- MPN Advocacy & Education International
- Amyloidosis Support Network (USA)
- Australian Amyloidosis Network
- Platelet Disorder Support Association (ITP and ITT)
Specific age groups
- Cancer and Young Adult, based in NSW. For 20 to 35 year age group
- The Australian Organisation for Young People Living with Cancer
- Children with Leukaemia (UK)
- Livestrong – the Comprehensive Australian guide for Teens and Young adults
- Grief site for young people
- Challenge – supporting kids with cancer
- Camp Quality
- Make-a-Wish Australia
- Children’s Cancer and Leukaemia Group – CCLG (UK)
- US resources for young people
- Children with Cancer UK
Transplant information
- Australian Bone Marrow Donor Registry
- Blood and Marrow Transplant Information Network (USA)
- Sydney Cord Blood Bank – information about donating cord blood for transplants
- Arrow Foundation, a patient support group at St Vincent’s Hospital, Sydney
- National Marrow Donor Program (USA)
- US National Cancer Institute Transplantation pages
- Be the March (USA)
Clinical trials information
- Australian New Zealand Clinical Trials Registry
- Australian Cancer Trials
- National Health and Medical Research Council Clinical Trials Centre
- Cancer Council of Queensland (download)
- Cancer Trial Treatment Options (USA)
Grief, loss & bereavement
Other useful groups and websites
- Foundation for Peripheral Neuropathy
- Cancer Voices NSW
- Cancer Australia
- Australian Department of Health and Ageing
- Look Good…Feel Better program
- Make-a-Wish Foundation of Australia
- Starlight Children’s Foundation of Australia
- Australian programs for 0-13 year olds
- Redkite
- Virtual Medicine Centre (Australia)
- Blood by the American Society of Hematology
- Gene Card – Human Gene database
- American Society of Clinical Oncology
- Australian Red Cross Blood Service
- NHS Online (UK)
- Healthdirect (Australia)
- Centrelink (Australia)
- Medicare (Australia)
Family and friends
Relationships, fertility and sexuality
Last updated on September 29th, 2022
Developed by the Leukaemia Foundation in consultation with people living with a blood cancer, Leukaemia Foundation support staff, haematology nursing staff and/or Australian clinical haematologists. This content is provided for information purposes only and we urge you to always seek advice from a registered health care professional for diagnosis, treatment and answers to your medical questions, including the suitability of a particular therapy, service, product or treatment in your circumstances. The Leukaemia Foundation shall not bear any liability for any person relying on the materials contained on this website.