Our privacy commitment

1. What is personal information?
Personal information means information or an opinion about an identified individual, or an individual who is reasonably identifiable:

• whether the information or opinion is true or not; and
• whether the information or opinion is recorded in a material form or not.

The types of personal information we collect may include your name, date of birth, gender, contact information, giving history, credit/debit card information, health information and other information about your history with, or relationship to blood cancer/s.

2. Whose personal information do we collect?
We collect personal information from people who are connected to our operations and activities – including employees, donors, research study participants, recipients of support services, participants in advocacy campaigns or health promotion projects, health professionals, suppliers, volunteers and service providers.

3. How do we collect your personal information?

Where possible, we will collect your personal information directly from you. This may be in person (for example, where you attend an event), on the telephone (for example, if you contact the Leukaemia Foundation for support), or online (for example, if you sign up for an event online).

We also obtain personal information from third parties such as contractors (including fundraising service providers), list vendors, health professionals, social and community workers. If we collect personal information about you from a third party and it is unclear that you have consented to the disclosure of your personal information to us, we will take reasonable steps to contact you and ensure that you are aware of the circumstances surrounding the collection and purposes for which we collected your personal information.

4. Why do we collect your personal information?

We may collect your personal information for a number of purposes relating to the daily running of the Leukaemia Foundation. These include marketing, support services, research, health promotion, volunteering and other LF support and other issues. These are detailed further below:

a) Marketing: to communicate with you about donations, products, services, campaigns, causes, news, events and possible media opportunities.

b) Support services: to provide you with information and support services, and to evaluate and report on these services. This may also include newsletters specifically relating to your condition.

c) Research: to conduct and/or fund research into the causes of blood cancers, as well as diagnosis, treatment and cures, improvement in quality of life, and other research news.

d) Health promotion: to provide you with information about living well with a blood cancer, and to seek your support for specific campaigns that may relate to a blood cancer.

e) Volunteering and other support: to invite you to assist us with community fundraising, patient transport, advocacy and other activities, where community assistance is required.

f) Other issues: communicating with you in relation to our operations and organisational impact, to verify your identity, to improve and evaluate our programs and services and to comply with relevant laws.

Where we collect your personal information for a specific purpose not outlined above, we will provide you with a collection notice which explains the primary purpose and any related secondary purposes for which we are collecting your personal information.

5. Health information and other sensitive information
As part of administering our services, we may collect health information and other sensitive information. For example, we may collect medical history information from you, if you are participating in a health program or research study. Sensitive information includes the following type of information: racial or ethnic origin; political opinions; membership of a political association; religious beliefs or associations; philosophical beliefs; memberships; sexual orientation; genetic information; biometric information; biometric templates. We will limit the collection of sensitive information to the minimum amount required to perform our services.

6. What happens if you don’t provide all this information?
If you do not provide some or all of the personal information requested, we may not be able to offer you services or provide you with information about our causes, events, programs and projects.

7. Using a pseudonym or engaging with us anonymously
Where practicable, you will be given the opportunity to engage with us on an anonymous basis, or using a pseudonym.

8. Website usage information and cookies

When you access our website, we may use software embedded in our website (such as Javascript) and we may place small data files (or cookies) on your computer or other device to collect information about which pages you view and how you reach them, what you do when you visit a page, the length of time you remain on the page, and how we perform in providing content to you.

A cookie does not identify individuals personally, but it does identify computers. You can set your browser to notify you when you receive a cookie and this will provide you with an opportunity to either accept or reject it in each instance.

Currently we are using Google Analytics to analyse the audience of the website and improve our content. No personal information is collected from Google Analytics. For further information on the Google Analytics privacy and data policy, please visit their Safeguarding your data page.

We may gather your IP address as part of our business activities and to assist with any operational difficulties or support issues with our services. This information does not identify you personally.

For information on how to disable cookies in Chrome, visit this site. For information on how to disable cookies in Internet Explorer, visit this site.

9. Opting out of direct marketing communications

Where we use your personal information to send you marketing and promotional information by post, email or telephone, we will provide you with an opportunity to opt-out of receiving such information. By electing not to opt-out, we will assume we have your implied consent to receive similar information and communications in the future. We will always ensure that our opt-out notices are clear, conspicuous and easy to take up.

If you do not wish to receive direct marketing communications from us, please contact us at Leukaemia Foundation, GPO Box 9954 BRISBANE 4001. Tel: 1800 620 420 and email: info@leukaemia.org.au.

10. To whom does Leukaemia Foundation disclose your personal information?

We may need to disclose your personal information to others in order to carry out our activities. This may include:

• External support services: to health care professionals, lawyers, other professionals, counsellors, funders, financiers, co-ordinators, volunteers, service providers, agencies and not-for-profits that provide support services.
• Researchers to conduct research studies to the causes of cancer, as well as diagnosis, treatment and cures.
• Third parties for marketing purposes: we may provide your contact details to other like-minded organisations to contact you with information that may be of interest to you. From time to time, we participate in data collectives where we share your personal information (other than sensitive information) with other organisations.
• Contractors and service providers who perform services on our behalf, such as mailing houses, printers, information technology services providers (including offshore cloud computing service providers), database contractors and telemarketing agencies.
• Cancer Council Australia and state and territory Cancer Councils that are members of Cancer Council Australia
• Organisations that Leukaemia Foundation partners with to jointly fundraise.

Wherever we propose to disclose your personal information to a third party not outlined above, we will provide you with a collection notice which explains the circumstances in which we might disclose your personal information.

 

11. Cross-border disclosures of your personal information

We use data hosting facilities and third party service providers to assist us with providing our goods and services. As a result, your personal information may be transferred to, and stored at, a destination outside Australia, including but not limited to New Zealand, Netherlands, China, Singapore, Hong Kong, Ireland, Canada, United States of America and the United Kingdom

Personal information may also be processed by staff or by other third parties operating outside Australia who work for us or for one of our suppliers, agents, partners associated with Leukaemia Foundation.

We take such steps as are necessary in the circumstances to ensure that any overseas third party service providers we engage do not breach the Australian Privacy Principles, including through contractual arrangements.

If your personal information is collected using a collection notice that references this Privacy Policy, you are taken to consent to the disclosure, transfer, storing or processing of their personal information outside of Australia. You also acknowledge and understand that by providing such consent that we will not be required to take such steps as are reasonable in the circumstances to ensure such third parties comply with the Australian Privacy Principles.

12. Where is your personal information stored?

We take all reasonable steps to protect all of the personal information we hold from misuse, interference and loss, and from unauthorised access, modification or disclosure. Your personal information will be stored on a password protected electronic database, which may be on our database, a database maintained by a cloud hosting service provider or other third party database storage or server provider. Backups of electronic information are written to drives which are stored offsite.

Hard copy information is generally stored in our offices, which are secured to prevent entry by unauthorised people. Any personal information not actively being used is archived, usually for 7 years, with a third party provider of secure archiving services.

Where personal information is stored with a third party, we have arrangements which require those third parties to maintain the security of the information. We take reasonable steps to protect the privacy and security of that information, but we are not liable for any unauthorised access or use of that information. Your personal information will stay on the database indefinitely until you advise you would like it removed, unless we de-identify it or destroy it earlier in accordance with privacy law requirements.

13. Your direct debit or credit cards

We use Secure Socket Layer (SSL) certificates which is the industry standard for encrypting your credit card and debit card numbers, your name and address so that it cannot be viewed by any third party over the internet. Your financial information is encrypted on our servers and access to this information is restricted to our authorised staff only.

14. Access to your personal information
We will, upon your request, and subject to applicable privacy laws, provide you with access to your personal information that is held by us. However, we request that you identify, as clearly as possible, the type(s) of information requested. We will deal with your request to provide access to your personal information within 30 days and you agree we may charge you our reasonable costs incurred in supplying you with access to this information.

Your rights to access personal information are not absolute and privacy laws dictate that we are not required to grant access in certain circumstances such as where:

• access would pose a serious threat to the life, safety or health of any individual or to public health or public safety
• access would have an unreasonable impact on the privacy of other individuals
• the request is frivolous or vexatious
• denying access is required or authorised by a law or a court or tribunal order
• access would be unlawful, or
• access may prejudice commercial negotiations, legal proceedings, enforcement activities or appropriate action being taken in respect of a suspected unlawful activity or serious misconduct.

If we refuse to grant you access to your personal information, we will provide you with reasons for that decision (unless it is unreasonable to do so) and the avenues available for you to complain about the refusal.

Participants in research studies should note that access to personal information such as DNA sequences is not generally granted, in accordance with the first exception above. This is notified to you, where applicable, at the time of committing to the research study.

15. Updating your personal information
You may ask us to update, correct or delete the personal information we hold about you at any time. We will take reasonable steps to verify your identity before granting access or making any corrections to or deletion of your information. We also have obligations to take reasonable steps to correct personal information we hold when we are satisfied that it is inaccurate, out- of-date, incomplete, irrelevant or misleading for the purpose for which it is held.

If you require access to, or wish to update your personal information, please contact us at Leukaemia Foundation, GPO Box 9954, Brisbane QLD 4001, Tel: 1800 620 420 and email: [email protected].

16. How we adhere to the Notifiable Data Breaches Scheme
The Office of the Australian Information Commissioner (OAIC) provides a set of guidelines about what an eligible data breach is. Leukaemia Foundation will notify you when your personal information has been involved in an eligible data breach that is likely to result in serious harm per the guidelines from the OAIC.

17. Complaints
If you have any queries or would like to make a complaint regarding relating to our Privacy Policy or the manner in which we handle your personal information, please contact our Privacy Officer, Vanessa Hall-Boman, on 1800 620 420 or email [email protected]. We endeavour to respond to complaints and queries within fourteen days of their receipt. If you are dissatisfied with our response, you may refer the matter to the Australian Information (Privacy) Commissioner (see www.oaic.gov.au).

If you do not provide some or all of the personal information requested, we may not be able to offer you services or provide you with information about our causes, events, programs and projects.

18. Additional information for European Union (EU) residents
Leukaemia Foundation welcomes people from around the world to its websites, and with the EU General Data Protection Regulation (GDPR) introducing some criteria that is stronger than the equivalent Australian Privacy Principles, we want to affirm our commitment to the six GDPR data protection principles in addition to our compliance with the Australian Privacy Principles and Privacy Act:

• Lawfulness, fairness and transparency
• Purpose limitation
• Data minimisation
• Accuracy
• Storage limitation
• Integrity and confidentiality

This policy was last updated on: 1 September 2020.